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Does anyone out there have Complete Androgen Insensitivity Syndrome???



If you have CAIS than could you please e-mail me or I'll e-mail you. I really need to see that there are people out there with the same condition that I am in. I was just recently diagnosed and I'm still having a hard time adjusting. Please reply if you have CAIS. I'm tired of feeling all alone in the world.

Hi,

Sorry, I do not have androgen insensitivity syndrome ... although perhaps some would say I am insensitive, so I'll try not to act that way in my answer ;-)

But anyways, teens often feel isolated ... so feeling like you feel is pretty normal. In your case, you have a bigger reason than most to feel alone. It is difficult to be in your position, but I hope you can realize that you actually are not alone. In fact, although conditions like CAIS are rare, they are still common enough that there are plenty of others like you.

Also, as you are aware, without the action of androgens, a baby will grow into a girl. And she will often be fairly tall and slender ... so it is said that a fair number of models and actresses actually have CAIS. I can think of one very famous actress who is rumored to be androgen insensitive ... I won't name her, because I have only heard the rumors, but you could find her with google, I'm sure.

To find others with your condition who live close by, you could contact the group below - or other groups. You could also ask your doctors if they can put you in touch with a patient group for people with conditions similar to yours.

We are all unique and different from each other. For now, you feel like this aspect of your uniqueness is a difficult secret to bear. But don't worry, it is just the way you are, it isn't good or bad or too strange, it just is. If you give yourself some time and can find some people to talk to who will understand (I wouldn't tell your high school peers just yet!), I think you will be fine ... and maybe you'll even find the silver lining and do some modeling some day :-) Source(s): http://www.medhelp.org/www/ais/...
Good Luck!
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