|
|
| *Women health>>>Chronic Fatigue Syndrome |
Does anyone have chronic fatigue syndrome? Do family & friends understand that you are doing the best you can? |
Does anyone have chronic fatigue syndrome? Do family & friends understand that you are doing the best you can? I was originally diagnosed CFS, but have another illness which also causes me to be constantly debilitated with fatigue. Like CFS, it doesn't "show" on the outside (i.e. it's not something you can point out to people like a cast on your arm or broken out in spots or something). In fact, so often people will say, "Well you LOOK good", and you want to cry out, but you feel so very tired and unwell. I have dealt with this for 7 years now, and it is still very frustrating. I guess people don't see being tired as something that can make a person feel so bad. They don't understand how your body feels like lead, and it wears you out to even think or read or even talk on the phone sometimes. It almost makes you feel like they think you are faking it, and you feel guilty for no reason. But you just have to put yourself and your needs first and stand firm. Those who really care will begin to understand. There is little you can do about those who don't. But know that there are others out there who share in your illness or a similar one and do care and understand. I do! I don't have CFS, but I have a disease that make me chronically fatigued. It's very rare that anyone understand what you're feeling or going through. The best way to at least TRY and make them somewhat understand is through education, and even then that may be rocky. Good luck. :) Yes. No, they think it's just being lazy. I don't know what the "best you can", means for you but somtimes for me it's that I have no motivation to do anything> Sleep, maybe it tends to be difficult to even clean the house thoroughy. Others can"t even deal w/leaving the house-it's depressing to be like that too...they both seem to go hand in hand. Anyoo, u can try anti-depressants like Topomax & Abilify they tend to give you motivation & even weight loss!` I have been on both of these for chronic fatigue syndrome, mood swings and depression.`` I have fibromyalgia, CFS, And chronic Lyme disease. I have had for 15 years now and no they do not understand. I find that it is impossible for someone else to truly understand unless they have lived it. I no longer worry about trying to make anyone understand. I go about my life the best I can and when I tire to much or am ill I tell them that and I go rest. They might not understand but they except it. Yes, and NO, they don't understand. I have CFS/Fibromyalgia. I've been told that all I need is a good night's sleep, or that I just need vitamin XYZ. There is no way they can understand the full spectrum of CFS: the total exhaustion, the physical pain. They think you're just tired, or lazy. I've even been told "It's all in your mind. Snap out of it!" Lazarus.... arise! The easiest way I have found to help people understand is to send them to informative websites. I had my Doctor explain it to my husband. Since he was made to realize what CFS/FM really is by my MD, my husband is much more understanding and supportive. Have been diagnosed with arthritis and other conditions that cannot be seen by naked eye without medical help. An in-law with fibromyalgia seems to think I'm crazy or have mental condition instead of physical even when I have many diagnoses of conditions. I have seen this in-law do things physically that I cannot do without pain. This in-law can just get up and go most days and do things that most days I cannot. My husband has even made comments like it's in my head, I'm crazy, imagining things. And these things really hurt my feelings and do not change my condition. Being told it's not real does not make it go away. Even when someone else has the very same condition they might not understand how it impacts and affects you differently than it affects them. Best thing you can do is let them know how you feel, give them information packets, have them come into doctor's office with you if needed, and tell them to do research on that so that they can know how to help you to better cope with your condition. |
| Tags |
| Caregiving Cervical Cancer Chiropractic Chlamydia Cholesterol Chronic Fatigue Syndrome Clinical Trials Colds Colon Cancer Contraception |
| Related information |
I was originally diagnosed CFS, but have another illness which also causes me to be constantly debilitated with fatigue. Like CFS, it doesn't "show" on the outside (i.e. it... Evening primrose oil (anti-inflammatory) and St Johns wort (focus/mood elevator). Also acupuncture for specific inflammation. Some brands work better than others - my endocrinologist wa... I would be reading this if you think you have Chronic Fatigue Syndrome. ... My mum finally overcame chronic fatigue syndrome about 2 years ago. It started when she head to go into hospital as she had a severe eye infection but even when she came out of hospital she ... I have chronic fatigue syndrome as well as fibramyalgia. The best thing to do as far as I have found is to eat a high fiber diet and lots of fruit and to walk everyday even if it is a block ... It is a diagnosis of exclusion when all known medical causes of fatigue are ruled out. Some clinicians doubt the existence of this syndrome.... I also had CFS and poor concentration. I decided to take drastic measures and cut out all sugar and white flour from my diet. The first two weeks, felt worse, but then I started to lose tons... Recovery is reported in a number of studies to be facilitated by rest complemented by a supervised program of gentle exercise. In general, no forms of medication have been shown to alter the... |
Health Categories--Copyright/IP Policy--Contact Webmaster The information on whfhhc.com is provided for educational and informational purposes only and is not a substitute for medical advice or treatment for any medical conditions. |