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I have achalasia. It is a rare eating disorder. i would like any information on this disease.?



I have achalasia. It is a rare eating disorder. i would like any information on this disease.?

http://en.wikipedia.org/wiki/achalasia...
http://www.medicinenet.com/achalasia/art...
http://www.nlm.nih.gov/medlineplus/ency/...
It is not that rare.. its a gastro esophagic disorder...
Achalasia means "no relaxation "in greek..
It is the persistant contraction on the lower part of the oesophagus (the alimentary pipe), just above the stomach...yes, you have felt it....meals stuck for 2 minutes or so in your lower chest, inability to swallow at normal speed, end sometimes "sensation of choking" even with small meals.
Most of the times, it subsides with simple medications such as propantheline, nimedipine (if it is too strong or cumbersome), etc.
If endoscopy (looking inside of the esophagus under sedation and mild anesthesiA) does not show improvement with diet without irritants and antiespasmodics, then, inflating a special "saline" baloon inside of the constricted or contracted lowest part of the esophagus, will in a controlled manner "tear" the contracted muscle, and there is success in about 78-82% ofcases, according to age group (the younger, the better results obtained).
The last resort, if despite that procedure, the contraction persists, the open surgery, in order to "open" the contracted muscular ring (which is formed of smooth or involuntary fibers) is cut in a controlled manner.
Open surgery is VERY SELDOM needed.
You will be OK.,...do not worry
Licensed physician (Germany)
It is indeed a rare disorder. It means the sphincter from your esophagus to your stomach is either very tight or closed altogether. It will make you have chest pain when eating and be unable to eat large portions of food. You may vomit frequently and have terrible heartburn. You may even vomit in your sleep. What happens is, the food builds up in the esophagus and will not go into the stomach and be digested. (or at least it is very slow.) The specialist will want to do a procedure with a balloon to stretch the sphincter in order to get the food to go down properly. It does not last forever and you may have to repeat this procedure a few times in your lifetime. There are a few other treatments like botox. You will need to take medicine for reflux and be careful about chewing your food thoroughly. Hope this helps. Good luck
DO NOT have Botox or the Balloon dilation.

My daughter had the Heller Myotomy with dor fundoplication. Don't have the dilation. It has a 60-70% chance of success, usually requires a repeat and is not very "accurate". The chances of perforating your esophagus are higher than with surgery.

I was just diagnosed and am having the surgery in June.
You can purchase a report from the rare disease organization (created by Society of Surgeons for the Alimentary Tract) for $7.50 US. The link to the rare disease org on WebMD is http://www.webmd.com/heartburn-gerd/acha...
Depending on where you live, you need to contact a major hospital. If the nurse hasn't heard of the disease, you don't want the surgeon operating on you.
Children's Hospital of Philadelphia and University Hospitals of Cleveland (Case Medical Center) both perform the surgery frequently.

The BOTOX injection will make the surgery more difficult. My daughter had Botox. It took two weeks to see results from the first injection, which lasted 6 weeks. Two months later, we repeated the Botox injection. She was able to eat immediately but that only lasted for less than a month. The Botox is not a long lasting treatment anyway, so unless you cannot have the laproscopic or open myotomy, I wouldn't bother. Neither would my surgeon.
http://www.webmd.com/heartburn-gerd/acha...
University Hospital, Case Medical Center, Dr. Ponsky
Children's Hospital of Philadelphia
Society of Surgeons of the Alimentary Tract
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