Fibromyalgia question.......?

What are your symptoms like and has anyone had it then was 'cured' from it or will this be forever?

I'm your man for this question. I was diagnosed last year with fibromyalgia (along with a defective heart valve, osteoporosis, inflammatory poly-arthritis, tendinitis, carpal tunnel syndrome, compressed spine) and had many painful tests done to assess the existence of other problems - as if I didn't have much to worry already. LOL Did I mention that I'm only 29? LOL Anyways, NOW, I'm 98% recovered from all my illnesses except perhaps the heart valve defect.

Getting back on subject, the signs and symptoms of fibromyalgia are:
*chronic widespread pain, fatigue, and soreness.
* "tender points" in certain areas of your body such as slightly below your elbows on the sides, above or below your knees and other areas close to joints.
*tingling sensation on your skin, muscle spasms, and nerve pain.
*problem sleeping is almost always there
*burning sensations on small "patches" of skin throughout your body - sort of sunburn(ish).
*fibrofob (foggy mind): you have trouble concentrating, quickly get overwhelmed with simple multitasking, and may forget what you did the day before (short term memory loss).
*TMJ (temporomandibular joint disorder) - your jaw locks in place, snaps when chewing, and may even tire you when masticating.

Man, there is a lot more. Still if you don't have all the symptoms, that doesn't mean you don't have it. These symptoms start to appear as time goes on. I started about 6 years ago, suffered, went to doctors, and finally, I was diagnosed. Fibromyalgia is difficult to diagnose. There's no blood work for it. It's diagnosed purely on the doctor's findings from a general physical and questions.

How did I cure it? Is there a cure? Conventional medicine will slap their drugs like sulfasalazine and lyrica onto you where their "mode of action is not quite understood". PLEASE! How can anyone take anything that just works but no one "knows" how...then you see the long line of disgusting secondary effects. So as you may deduce, I'm a naturalist and have kept all my physicians in awe (2 neurologists, 1 rheumatologist, 1 neurosurgeon [muscle biopsy], 2 general practitioners] as to how well I cured myself WITHOUT big pharma drugs.

There's supposedly no cure. Hah! I'm living proof. What did I do?

5 mg sublingual vitamin B12
1500 mg of chondritin SULFATE (not hydrochloric - HCL)
1500 mg of glucosamine SULFATE (not hydrochloric - HCL)
2500 mg of methylsulfonylmethane (MSM)
and a great multi-vitamin of great quality (not generic, filler, Wal-mart brands or Centrum) such as Alive! by Nature's Way
AND LOTS OF WATER!

If you have any questions, please feel free to contact me. I know what you're going through if it's you OR someone you know. It's HORRIBLE. I actually would at times pray to be taken away (no suicide thoughts though) from here because it was difficult to wake, walk, and sleep. Thank goodness my prayers were answered and was led to discover my cure.

I hope I helped.

Former Fibro,Osteo,Arthritis etc etc etc .... LOL....patient.

NOTE: I TOTALLY disagree with whoever says there is NO cure for fibro. Perhaps, some don't respond well or as quickly, but there is. Just because medical literature says there's no cure doesn't mean there isn't. Remember, the drug industry benefits from it's consumers being sick. In this world, you HAVE TO think outside the box and give a chance to all possibilities including our own natural backyard. My fibro WAS/IS the "true" fibromyalgia. I had ALL symptoms...ALL OF THEM...not one alluded me...down to the minute (slight hypomagnesemia, tmj, etc)

I have pain, fatigue/sleep issues, stiffness, fibrofog, numbness/tingling, twitching, creepy crawlies (neuro system misfiring electrical signals..

I know for sure I am not misdiagnosed-

I do not have any other conditions such as arthrits/lymes that could explain the symptoms..

I have done extensive research and don't always believe teh doctors......

If you have real Fibromyalgia-there is no cure.

Some people can be helped-

I had a seizure that reversed the symptoms 6 years ago-but they have slowly come back-

I was also the first person in the world to receive the Vagus Nerve Stimulator as an experimental treatment and feel about 25% better--about 3/4 people that have gotten teh device report improvement

many people diagnosed with FMS actually have other conditions such as basic depression, vitamin deficiencies, arthritis, psychosomatic illness, hypochondria, or are using it to commit disability fraud (and are miraculously cured when they can't get money for it anymore......These are the people taht have been cured...This is not to say that they wer not truly sick-they were-but with something other than Fibromyalgia....

For those of use that have true Fibromyalgia-our symptoms can wax and wane. we may ber able to get reasonable control over it-but cannot be cured.

Not yet, anyway. but there are many treatments being explored including the Vagus Nerve Stimulator and Xyrem prescription

to find out what clinical trials are going on

visit
www.clinicaltrials.gov

All symptoms are not the same for everyone, the most common being soft tissue pain, fatigue, and sleep disturbances. So far as being cured, I don't know, but there are things that people have done to alleviate the symptoms. Dietary changes are a big factor, going organic has helped many people, there seems to be a link to additives and preservatives in many foods and Fibromyalgia. Hormones also tend to be a factor, more women than men are effected.
Dr Teitlbaum has done years of research on FMS and Chronic Fatigue....his book Pain Free 1-2-3 is a valuable resource for anyone with FMS and his website is full of useful information.

http://www.endfatigue.com/resources/

Dr Weil also offers good information on his site
http://www.drweil.com/drw/u/ART00701/fib...

No your symptoms dont have to be like they are, forever. You can feel better ! Notice I didnt say you would be cured?

From time to time you may experience relapses simply because we dont have control over everything in life. Don't give up hope. One of the most important things you can do for yourself is to learn every possible thing you can learn about fibromyalgia . the other important thing you need to learn is to have a positive outlook. Negativity fuels pain in the body .

Read my blog on things I found that helped me to feel better. I am not cured by any stretch of the imagination but I have learned that lots of things that affect my fibro ARE in my control. Dont listen when people say you wont get better. They dont know what they are talking about. There is hope!

http://360.yahoo.com/profile-u92l7DQ6crV...

By the way, you may want to be allergy tested before you attempt to self treat with a bunch of supplements. Allergies can cause pain in the muscles and taking things you are allergic to will compound your pain problems.

My main symptoms are pain in my back & neck, headaches, stomach "issues" and memory issues. All in all it is manageable but very frustrating, my condition has not progressed but it has also not gotten any better, every day is a different pain but untimately still pain... check out my website for more info http://www.fibromyalgiasource.com