I have read alot about Fibromyalgia but would like any input about this syndrome from fellow sufferers.?

I have had Fibromyalgia since 2000 and Neuropathy along with it. The pain and fatigue are endless! Also the so called brain fog is nerve wrecking. I am only 46 but feel 86!!! Is there anybody who can give me some insight to any new information that may help?

I don't know what you condider new-

Fibrimylagia is believed to be a disorder of teh Cnetral Nervous System.

There is NO INFLAMMATION-so anti inflammatory meds/dietrs don't help.

It is NOT a form of arthritis--the syndrome itself is neuro in nature--only the symptoms are musculoskelertal--it is beleived to be a problem with the way the brain processes chemcals/neurotransmitters.

Lyrica was the first FDA approved med---Cymbalta was just approved a few days ago.

Other treatments in experiments include Xyrem (GHB-date rape drug) and Vagus Nerve Stimulator (pace maker for teh brain)--I am teh first person in the world to get the Stimulator for FMS

It is not Autoimmune
It is not a vitamin deficiency

I know how you feel! Fibro fog is the most frustrating symptom for me. Massage therapy has helped with the pain and headaches but having my head not work is something I cannot handle. I try to keep my mind as active as possible, doing crosswords, reading the newspaper, playing puzzle games but really there is no way to cure the fog. Since memory is usually signifincatly affected by the fog try to write down as much as you can but remembering where you put the paper you wrote stuff on can be an issue... use the computer to keep track of your thoughts - notepad is easy to use and you can write anything that comes to your mind or a to do list if that works for you.

Exercise is your friend - start doing a little each day and gradually build up to half an hour each day.

Eat tuna, salmon, mackerel fish - it can come in a can - as a source of omega 3 oils. Also use olive oil.

Eat rolled oat porridge and prunes for breakfast to give you protein to make dopamine - your movement hormone.

Stay away from white anything - bread, pasta, rice - eat wholemeal bread (try different grains -rye) , brown rice, gluten free or wholewheat pasta.

Stay away from cakes and sugary foods and any processed foods.

Well there are two new medications approved for it now... Lyrica and Cymbalta to help with the neuropathic pain aspects of it plus you have neurpathy so maybe these might be helpful meds if you aren't already on them.

I have FMS and have had it since childhood along with juvenile idiopathic arthritis (formerly known as juvenile rheumatoid arth). Im 30 now and i often feel old but mostly young at heart despite having pain all of the time.

I take a lot of medication which i dont like but it does help maange the pain.

Im not sure what sort of new information that you are looking for. I tend to keep up on the research and latest but I havent heard or seen anything really earthshattering around FMS of late.

Some work is still circulating about the causes of it... the brain dysfunctions and processing that shows up with fMRI scans and such but nothing really big. A bit more awareness has occured.

One great source of current information is The national fibromyaglai association.

www.FMAware.org

Sometimes people get upset because they have advertsement from drug companies and such but I can vouch for these people because I know Lynn and some of the others personally. It cost a lot to become a non profit and to run this company and they needed all of the help they could get. In the end they figured being able to reach more people and having more resources is worth taking money from the drug companies etc and I feel I have to agree with them because they are doing a great job. They are a lot of the reason that the new fibro commercial is out there now so good for them.

Anyways, best of fortune... I know its rough but at least as time passes, greater acceptance is happening a bit at a time and I think there are ways to get your own pain mangement together eventually. Im on like 10 medications to manage all of my illnesses and thats a lot but they do help. I use a scooter and manual wheelchair and walker for getting about and they make my life way easier. I wouldnt have atrended and graduated from the university had it not been for these devices so i dont let others tell me its so sad or feel bad for me or judge me, etc...

you do what yuou need to do for you and not worry about the publc stigma, judgements and ignorance... it isnt worth it...