Fibromyalgia: If you've been diagnosed, please share your experiences, I was diagnosed Monday?

For a long while I was tired and in pain all the time and people thought I was being a big baby and making excuses to lay around alot. Now I know I really do have this condition. Does anyone else have pain in their tail bone and jaw constantly?

Hi. I am sorry to hear you have fibromyalgia. I have been diagnosed for 2 years now. It is not fun. Please know that you are not alone. If you google fibromyalgia forums or fibromyalgia message boards you will find sites that offer information, support and understanding. In the meantime...do you have a doctor who specializes in fibromyalgia? Most people who have fibro are on medications for pain or muscle relaxants. Some of us are on anti-depressants. Everyone is different in how and where they feel pain but then again...we can all relate to the pain. I have pain in my legs, arms, hands and neck today. My jaw bothers me a lot too. My tail bone hasn't bothered me.
I am really sorry to hear you have this aweful condition. I did a lot of reading ( library books and online ) to find out as much as possible about fibromyalgia. That is the best advice I can give you. Research and find a support group in your area or online. Good Luck to you!

yes i get pain in jaw and i can't stand for along period of time cause my tail bone hurts. every joint in my body cracks now and it hurts when it does it. i can't sleep at night cause the pain in my legs,feet, elbows and exspecially in my neck. i have been having a very tough week. i am getting retested for lupus on thurs. i have one gland in my neck that has been inlarged for 3 months now. Fibromyalgia just plain out sucks!! you can read about it at myfibro.com lots of imformation on there. my best friend has this as well but there are many difference. i wish you all the best!!
ps. i hope your hair don't start falling out cause my hair has gotten very thin.

There is no doubt that living with a chronic illness isn鈥檛 one of life鈥檚 most exciting joys. As a matter of fact, it can be one of the most trying experiences of a person鈥檚 life. Take that frustration and compound it by about a million and you have something close to the problems a person with fibromyalgia is forced to deal with day in and day out. This little understood disorder is difficult to diagnose, often misunderstood by the patient鈥檚 family and friends, and incredibly painful on top of all that. Each patient is different, but the understanding the basics of this disease is vital in providing support to affected people.

* Fibromyalgia symptoms
* Causes of the disease
* Long term prognosis

One of the most difficult parts of trying to diagnosis fibromyalgia a doctor has to face is the wide variety of symptoms associated with the disorder. There is no one set test to be performed that will give the health care professional a definitive answer. It becomes a trial and error exercise that often leaves the patient and doctor very frustrated. The general description of the symptoms of fibromyalgia includes chronic fatigue, irregular sleep patterns, and pain all over the body. For each patient, the symptoms also vary in severity making the disease even harder to pinpoint.

It would be much simpler to treat and possibly cure fibromyalgia if doctors know exactly what causes it. As it is, they only have possible theories to work with. Some experts believe it may be a pain sensitivity in the brain that causes the brain to 鈥渙ver react鈥?to stimulus of any kind. There are also theories that support the idea that fibromyalgia is the result of an infection or illness. In a nutshell, the medical jury is certainly still out on the causes of the fibromyalgia syndrome.

While it seems like there is only bad news in regards to fibromyalgia, at least patients can be comforted by the fact that the disease does not progress and isn鈥檛 fatal. Everyday more research is done to find more effective ways to relieve pain and correct the sleep and chronic fatigue problems associated with this disorder. By working closely with their doctor, fibromyalgia patients can often find a treatment plan that is effective with this disease. With patience and understanding the life of a fibromyalgia patient can be comfortable and normal. In the meantime, hard work is being done to understand it everyday.

Source: http://www.fibrofruit.com/fibromyalgia/1...