Attended a Fibromyalgia clinic for 5 months in 2000. Please do not tell me to stretch, exercise regularly, use biofeedback, pressure points, tai chi, or yoga. That's being done. Take Neurontin and Advil. Is there anything else out there? Not desperate (as if a fibromyalgia sufferer is never desperate) but would like to know.
I've had it for over ten years. I used to allow it to control my life. I went to a doctor regularly, took enough meds to put a real damper on even feeling like a normal person. Now I live with the pain and take a minimal amount of antidepressants to help me relax in my sleep at night, not to tighten up my mussels. I do not hear near as much on it as I used to. I do know that I am not as frustrated though because when I first got it, no-one knew what the heck I was talking about and I felt like it was so misunderstood, but now when you say the word fybromyalgia or FMS, most re-actions are: oh my goodness, you have that, I hear it's really bad. It helps for some reason to know that there is more understanding of how debilitating of a decease it is. I think you could probably find articles on it all over the web if you are still interested in reading more about it. Good Luck. It's really a tough thing to cope with. |