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My baby tested positive for a genetic disease and I feel very depressed?


I'm pregnant with a daughter and I had some testing performed. I found out recently that the baby tested positive for Cystic Fibrosis. I've been feeling very depressed since I found out about it and not enthusiastic anymore for some reason. I even haven't felt like eating much. I've just been staying home mainly and not seeing people really.
My little sister who I've always been very close to is 16 and has Cystic Fibrosis. All throughout her life she's required so much care and has suffered a lot from it. She's had to spend a lot of time in and out of the hospital and gets so many infections. She'll have to have a double lung transplant eventually because of the very bad state her lungs are in. She also has several digestive problems because of the disease and has to have a feeding tube that delivers extra nutrients. I've always hated to see her suffer....How can I make myself feel better and not so down about everything?

I'm in my 4th month, and no I'm not going to have an abortion, I wanted to have a baby. I was just hoping she could turn out to be healthy and not have to go through the things my sister has to go through, so the tests results were a big let down to me

I know 100% how you feel, but with me the turned around and told me they made a error and my baby was fine. (I can only hope this happens to you)
I will be honest I wanted to have this baby more than anything I had been trying 5 years and when they told me my baby could have downs I felt sick the next day I hated it when he moved and did not seam to care any more but before they told me the baby was ok I got used to it and the fact this was my child and if I didn't love it who would I finally got used to the idea and they told me that they messed up.
I also work in disability care and there are extremes of cystic fibrosis and then some that don't even show any signs I guess being genetic you know this.
just remember that its your baby and you will love her no matter what and she will love you to I hope everything works out ok and my heart goes out to you

awww im sooo sorry this is happening to you, it must be horrible for you. i feel for you girl.
So there is nothing really you can do abou t this situation honestly so you just gotta go out there and live your life, get back to the old routine.
Since there is nothing left to do , im so sorry but you have to move on. Of couse your gonna be like hey i cant this ismy baby,but for now as you baby is not born yet, be happy ok?
good luck babydoll :)

Asking honestly... Why did you want this child? I am sure the thought of genetic testing came up prior to your pregnancy so what you need to do is remember for what reason you are having this child.

You should see a counselor about this and work through it, Praying for you and your family.

Pick your self-up - this baby needs you and your love. She is still your daughter and no matter what is wrong with her, she deserves the best.

I know your upset - but she is a person and deserves all the love and care in the world - God Bless

Please go and get a second opinion from another doctor, may be the doctor can give you a good advise.Definitely, you do not want to see your baby suffered like your sister.

I'm sorry about the news. Get a second test to see if it's positively true. How far along are you? Are you open to the idea of a late term abortion? I know, I'm going to get a million thumb downs for even mentioning it.

I'm sorry to hear that. I don't think it's something you can make yourself feel better about. Acceptance will come with time and you'll have to be strong for your little girl.

Oh sweetheart I don't know what to say. Its just something you need to work through and you WILL get through this<3 Did your daughter have a higher risk because of your sister?

Dont worrie too much about this. When your little girl is growing up just try your best to make her feel like a normal child. Your going to love her no matter what and you dont know for sure if this case of CF is going to be as bad as the case your sister had so dont worrie about it until she is born. I think you shoud really look into the disease and research alot about it before making any decissions and maybe try to get your mind of it by doing something you enjoy.

First: I'm sorry to hear about the results. It may be a very long battle but seeing your daughter's beautiful face every day will help with that.

2nd:Did you only have the blood test and ultrasound performed to check so far? Those have decently high rates of being false positives, even with a family history.

You can get an amniocentesis done, but be aware it carries a risk of miscarriage.

3rd: Do everything you can to prepare for her, you're being given a heads up. Try not to worry too much in case it's a false diagnosis but learn what you can to help cope with the situation. Talk to others who have been through a pregnancy with genetic disorder issues.

Good luck.

Test results can be horribly depressing and they can be wrong. First they said my son had Tricemy 18-deadly by age 2. Then they told me he'd have downs syndrome and he's perfectly healthy. Maybe the test is right since it runs in your family. I'm not in your shoes and can't possibly understand what you're going through. That's why I really think you should get counseling and possibly find a support group for people that have to deal with the disease. Only they can give you the advice you need and the understanding that may make this easier for you. Good luck sweetie. Don't forget God is here for you.

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