|
|
| *Women health>>>Genetic Testing |
How can I find out if I have PKD(polycystic kidney disease) without the expensive genetic testing? |
For about 11 years I've had a cyst in my right kidney causing it to enlarge and a liver cyst that was once drained during my gallbladder removal a few years ago.The liver cyst has filled again and my kidney cyst causes severe pain daily.Over the years,I've had ct scans,mri's and sonograms to keep track of how large my kidney has grown.2 out of 3 doctor's(including a nephrologist from the Kidney foundation)suggests I have PKD and has told me that I now need to undergo genetic testing to verify this.I have no health insurance and there is only one income in my household.Due to the daily pain,I am so limited to activities that I can do with my two children.We are so stressed that we cannot get an answer from these "specialist" and can no longer afford any more testing or ER visits.I feel like I am alone.How can i get a diagnosis when i can not afford the testing?I've been to the"sliding scale fee" clinics(they say my husband makes too much money but fail to realise we pay bills with it). Currently there is no cure for PKD, not with conventional medicine or (despite what you have been told) alternative medicine. Ultrasound (sonogram) is usually used to diagnose this especially when the cysts are active. Genetic testing confirms the diagnosis. CTs & MRIs can be used but are not ususally required. The extra imaging you have had may have been redundant and unneccessary. For now, get a hold of all your films, reports and labs -- you will need them. The main concern at this time is to prevent or control pain, high blood pressure and UTIs and well as find help. You may want to contact the Kidney Foundation and see what they suggest. Call to get an 800 number and check their website. They may have programs for someone in your situation, programs that will give you immediate help. My hope is that you can avoid ESRD (end-stage renal disease), kidney failure and transplant. I'm not certain if you are eligible for Disability or Supplemental Security Income benefits through the Social Security Administration but it's something to investigate. You would need the medical information I suggested you acquire and any written physician statements you can get concerning the probable diagnosis. If I am able to find additional help for you, a grant perhaps, I will contact you if I'm able. God bless you and your family. You're in a very frustrating position but I'm sure there are others who will try to help. You're not alone! Source(s): I'm a nurse. Addendum: I see there's no way posted to contact you so I'll give you my e-address: nurselmh@sbcglobal.net Thanks for choosing my answer as the best one. As I previously stated, I will investigate grants that may offer financial and/or clinical (medical) help but I have no way to e-mail you. Use my e-address (nurselmh@sbclgobal.net) and contact me. I will then have your e-address. Thanks again! Tony & Michelle: Go to www.governmentgrants.com and check it out. You need to check into area churches and civic organizations that sponsor "free clinics" during evening hours, in many cities. Genetic testing is simply another "diagnostic" procedure, and will NOT provide you with relief from the PKD. You may be pleasantly surprised to find that there are many "alternative" treatments and procedures that will either alleviate the symptoms, or even possibly CURE the condition, without major expense! |
| Tags |
| HPV Hypnosis Hysterectomy GERD Genetic Testing Genital Herpes Glaucoma Gonorrhea Depression |
Health Categories--Copyright/IP Policy--Contact Webmaster The information on whfhhc.com is provided for educational and informational purposes only and is not a substitute for medical advice or treatment for any medical conditions. |