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Is it possible...please read! (Heart disease and PH)?


I was diagnosed with pulmonary hypertension four years ago. I was diagnosed with Restrictive Cardiomyopathy 18 years ago. I have lead a relatively normal life; always believing I was different, couldn't tolerate exercise, etc.

A couple of years ago I became pregnant. Everything went well (I hardly had any morning sickness) and I ended up delivering prematurely because the placenta matured, but thank God both the baby and I came out fine; he is healthy, I had an emergency C-Section with general anesthesia and everything went well.

I am grateful for this blessing. I have read that it is very unlikely to survive with any of those two conditions, let alone both. I guess I'm just wondering if there has been a case where either of those conditions have gotten better on their own (I have never taken medication) or if it possible to be misdiagnosed for so many years. I've tried to find people in similar situations but no such luck. Any feedback or opinions??

Thank you!!

Congradulations on the blessing of motherhood. I have never heard of anyone with a diagnosis of pulmonary hypertension without being prescribe medication. I agree with the others in that your must absolutely get a second opinion from a physician that is certified in cardiac with a specialty in pulmonary medicine. I will also send up prayers for your health.

Congratulations on motherhood ... being a father of three beautiful girls I know what a blessing it is.

Why dont you get a second opinion ... for your peace of mind.

I wish you the best .... I'll pray for your continued strength and a favorable diagnostic workup ... God Bless You!

Maybe you have just had a blessing in disguise... cherish every moment and don't take anything for granted... you may have been misdiagnosed... get a second... third or even fourth.. opinion before you start taking medicine... good luck to you!!!

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