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| *Women health>>>Heart Disease |
Adults with Congenital Heart Disease? |
Is there a way to find local support groups for adults with congenital heart disease? I'm 23 and had 2 VSD repairs and 1 ASD and I still haven't actually met face to face with someone else with congenital heart disease and sometimes I think it'd be nice. Please check out the Adult Congenital Heart Association at http://www.achaheart.org . It's a national nonprofit organization dedicated to the education and support of adults with congenital heart disease. There is a wealth of information there, including an online clinic directory, a very active message board (of which I am one of the moderators), and lists of local groups for face-to-face support. We just held a national conference in May with over 200 attendees from all over the country and some from overseas. A number of additional local groups were formed after the conference was held. Talk to your cardiologist or someone at the hospital. I attend a heart center meeting monthly at the local children's hospital. My son has congenital heart disease. There are also a lot of local things where I am for heart disease. The hospital is a great place to take a look for events and such. Grown up congenital heart disease (http://www.guch.org.uk/) and adult congenital heart disease (http://www.achaheart.org/) support groups are there in plenty. |
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