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Does any know anything about central nervous system Lupus?

I have an 18 year old daughter was diagnosed with Lupus 2 1/2 years ago. Her family doctor has been treating the pain with medication. She recently had an episode where she passed out for nearly an hour. Her neurologist said something about central nervous system lupus. How serious is this type apart from the muscular-skeletal lupus? She hides her pain really well. She has been homebound from school because of her pain for the past 2 semesters. What kind of treatment is available for my baby?

Lupus can indeed affect the central nervous system. It is also important to make sure her passing out was a nervous system issue and not one of the lupus clotting disorders (antiphospholipid antibody syndrome).

If she is not under the care of a rheumatologist, please consider that. Most family doctors are not trained in the nuances and dangers of lupus. The neurologist, rheumatologist and family doctor need to be on the same page. That is not likely to happen unless you or your daughter take charge and make sure that ALL of her doctors have ALL of the information.

Some lupus patients also suffer from neuropathy. It sounds like your daughter might benefit by a thorough work up with a few specialists.

Best wishes.

Google: mayo clinic >> diseases & conditions >>lupus

Also Lupus Foundation Of America

Look for clinical trial for lupus.

Good luck to your family

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