Women health
*Women health>>>Lupus

Anyone know of a good book about lupus for families dealing with the disease?


I am looking for a good support book for families dealing with someone that has lupus. Any suggestions?

The definitive book is "The Lupus Book", by Daniel Wallace, MD. I believe it is in it's third edition now. This book is pretty much the holy grail when it comes to knowing about Lupus. Dr. Wallace practices in Los Angeles, CA and sees almost exclusively Lupus patients. He has a terrible bedside manner but is an exceptional clinician. His book will give you all the answers you need. The other books that Linda mentioned above are helpful if you're looking for ways to deal with the disease not to actually understand what is going on.

The First Year--Lupus: An Essential Guide for the Newly Diagnosed by Nancy C. Hanger (Paperback - Oct 1, 2003). I gave it to both my sons after my diagnosis with systemic lupus erythematosus with major organ involvement.

Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Illness, Second Edition by Paul J. Donoghue and Mary Elizabeth Siegel (Paperback - Jul 2000) is excellent!

The Chronic Illness Experience: Embracing the Imperfect Life by Cheri Register (Paperback - Sep 1, 1999)
Also go to the second link below, click on "New to Lupus" read the article. At the end there are links to 11 more fact sheets from the Lupus Foundation of American, pamphlets from the National Institutes of Health-National Institute of Arthritis, Musculoskeletal and Skin Diseases and other information as well.

Tags
Incontinence Infertility Irritable Bowel Syndrome Liposuction Lung Cancer Lupus Health Insurance Heart Disease Hepatitis High Blood Pressure
Related information
  • Anyone know of a good book about lupus for families dealing with the disease?

    The definitive book is "The Lupus Book", by Daniel Wallace, MD. I believe it is in it's third edition now. This book is pretty much the holy grail when it comes to knowing about Lu...

  • Can lupus cause you to stumble or fall easily?

    i am not sure if lupus can do this, but certain medications that are used to treat lupus can make you dizzy, which could cause you to fall.

    ...
  • Is Lupus considered a Terminal Illness?

    Lupus is not considered a terminal disease. It is a chronic disease that can lead to an early death if not properly maintained. Lupus actually doesn't kill anyone but it is the complications...

  • Lots of questions and concerns about LUPUS?

    Hi Kristine, I'm sorry about your recent Lupus diagnosis. Lupus is a very complex disease and it affects everyone differently. I'm assuming that you've had some complications that...

  • Does anyone know of a support group for people with lupus?

    What city are you looking for the support group in?

    ...
  • Do you know any sites where i can find a sponsor for my sister (lupus & kidney disease patient)?

    What do you mean by sponsor, AA sponsor? Support group? Kidney donor? EDIT: There aren't many sponsors for medical treatment. Unfortuantely she may have to seek aid from the government,...

  • What exactly is lupus disease ?

    Lupus is an autoimmune disease, which means that instead of just attacking foreign substances, such as bacteria and viruses, your immune system also turns against healthy tissue,including your join...

  • I have lupus and lost a baby at the start of nov and i am preg ?

    Chances are you have Hughes Syndrome or APS (antiphospholipid antibody syndrome) which occurs in some lupus patients. A blood test can tell you. People with this problem have blood that clots wh...

  •    

    Health Categories--Copyright/IP Policy--Contact Webmaster
    The information on whfhhc.com is provided for educational and informational purposes only and is not a substitute for medical advice or treatment for any medical conditions.