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| *Women health>>>Lupus |
Does anyone suffer from Lupus on here? |
I have SLE, and also autoimmunie Thyoiditis......I don't feel good most of the time.....how bout you? I have Fibromyalgia, it's not the same but has similar symptoms. FIBROMYALGIA - It took forever for me to learn how to spell it. 12 months ago, I was devastated. I thought "My life is over, how I can raise 3 kids if I can hardly function". I know a couple of people who have Fibro. Their lives are completely dictated by the medication they have to take. I became very depressed because I didn't want to become dependant on drugs to function from day to day. Here is a little info to give you an idea of what Fibro is all about. * It is a neurological illness that tells your body that you are in constant pain. *It's like arthritis, because it makes your joints hurt *The pain never stops; it just gets weaker or stronger. And you never know from one day to the next how bad it will be. * Other symptoms include memory loss, loss of concentration (also known as Fibro Fog), dizziness, numbness and loss of feeling in the hands and feet, and extreme fatigue. People with fibro also suffer from sleep disorders * There is no cure and it never goes away all the Dr. can do is treat the symptoms.. With all that it's easy to see why people with Fibro become depressed and drug dependent. Once I was diagnosed, which was about 2 years ago, my Dr. said "let's put you on an anti-inflammatory, a pain killer, a sleep aid, a muscle relaxer, and an anti depressant" I just laughed and said NO WAY. How could I be expected to function on all that ****? How could I get out of the bed? I didn't know what I was going to do, but I knew that I wasn't going to do the drugs. ALTERNATIVES - I stopped working all together. I began researching Fibro. I started with homeopathic treatments. I found several ways of treating the pain without medication. Acupuncture, body wraps, massage therapy, hot stone therapy, etc. I changed my diet and bought a new mattress to help me sleep better. Then I discovered that gentle exercises like Yoga and Pilates help as well. After a while, I began sleeping better, and with more sleep came more concentration and memory. Then I realized that I am happy again and healthier too. Some days are hard, but most are good. In my research, I found that many others suffer from similar invisible illnesses like Lupus. That's when the decision was made to change my career. THE ALOE SPA - I'm already an esthetician, I do facials and skin care for living. I use aloe and other natural ingredients to help people heal skin damage. I decided to take my job to the next level. I didn't quit being an esthetician; I just put it on hold until I got my **** together. The one thing I discovered, while researching the alternative treatments for Fibro, is that massage therapy, stone therapy, and acupuncture are very expensive. I cannot afford to go to the spa every time I wake up in pain. So I decided to learn to do it myself and open my own spa. I will help others with the same pain. I will also teach Yoga and Pilates to women who are uncomfortable working out in a big gym. So far, it's been a great experience. I refused to allow the medications and Dr's dictate my quality of life. I have 4 children and a great business. For a long time, people just looked at me like I was crazy when I told them that I was switching to a holistic lifestyle, but I didn't care. It really worked wonders for my everyday life. here's a link to my site www.thealoespa.com and a link to a fantastic support site for people who suffer from invisible illness like lupus and fibro. http://www.butyoudontlooksick.com/... Best of Luck http://www.lupus.org Best wishes... I never had lupus but my aunt had it I don't know much about it. I hope you will get better soon. I do, and it's made my life miserable. Always exhausted, my joints always ache, and I suffer from repeated kidney and lung infections. I had chemotherapy that was supposed to help, but all it did, I believe, was weaken me even more. The hardest thing is just trying to keep it from impacting your life too much. I tell myself to be grateful for all the things I CAN do, not what I can't do....... I don't but my Mother did so did my 1th cousin and my niece has a form of it. I have a immune system disorder. Which could be caused from. It is treated the same way with steroids. It does make you very sick at times but you will have good days too and that is something to look forward too. God Bless you. yes i was diagnosed with Sjogrens about 5 years ago which is a type of Lupus i am going to a physical therapist to try and keep my legs as Mobil as poss able and to cut down on the pain/ I still work a full time job and try to stay active / I take a pill for circulation and one for pain just before bed/ being still seems to make the cramps in my legs worse i have found just being active/ cutting back on sugars / and really not giving it much thought works the best YES I DO:( I ALSO HAVE FIBROMYALGIA AND BACK PROBLEMS NOT TO GET BETTER BUT ONLY WORSE:( YES IT SUCKS, YOUR TIRED ALOT, YOUR HAVE PAIN AND SWELLING, ESPECIALLY IF YOU ALSO HAVE RHEUMATOID ARTHRITIS WHICH I ALSO HAVE:( YES I AM GOING FOR THE GOLD, LET ME TELL YOU BUT THE WORST 2 THINGS ARE, I HAVE A 19 YR OLD SON WITH A BRAIN OF A 1-3 MONTH WHO SOLELY DEPENDS ON ME & MY HUSBAND, I LOVE MY SON, AND I WOULD NEVER LET HIM GO INTO A INSITUTION:).......... HE'S MY BABY:) THE NEXT WORSE THING IS WHEN YOUR HUSBAND SAYS I HIDE BEHIND MY LUPUS???? HOW YOU CAN DO THAT IS BEYOND ME! LET HIM PUT HIS FEET IN MY SHOES!!!!!! YES, I ALSO HAVE THE SLE AND ANYONE WHO HAS HAD A MOTHER WITH IT AND IT'S BEEN PASSED DOWN TO M, YOU SHOULD GET CHECKED!! GL TO YOU:) WRITE TO ME ANYTIME ON HERE OR MY E-MAIL THANK YOU |
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