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Do you think people with lupus have a hard time being understood? and why?



Do you think people with lupus have a hard time being understood? and why?

Absolutely not. I have scleroderma ("cousin" to lupus) and neither of these autoimmune disorders has any effect on brain or neurological function.
No, a friend of mine has lupus. She is very articulate.

Unless you mean that she looks healthy but is very sick and people don't understand the nature of her illness. Then sure, but it is like many other illnesses where people look healthy but feel terrible.
Yes. First of all, autoimmune diseases are difficult to diagnose and by the time they are diagnosed they have progressed. A lot of people do not understand the pain and agony associated with autoimmune diseases and often think the person is a crock. Even a lot of physicians are not supportive to their patients with autoimmune diseases. I think that there is just not enough research being done in these areas in order for health care professionals to understand them and know how to treat them.
Lupus is considered the disease with many faces, my mom has Lupus and it took the doctors awhile to figure out just what she had. My cousin has Lupus as well, but her symptoms are totally different.
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