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| *Women health>>>Lupus |
Have been diagnosed with SLE (Lupus),.I have severe pain throughout my body,is this normal.? |
Lupus is attacking my Lungs & Liver and I have also had a few blood clots recently. I have severe joint pains and feel generally very unwell.My doctor has now increased my steriods and I am also on Warfrain to keep my blood thin. Are these normal symptoms. Hi, i'm sorry to say that it is quite normal. I have Lupus SLE, and was diagnosed just a year ago. When it was active, I was in pain in my hips, hands, and feet. Sometimes it was hard for me to walk normally (without waddling). Right now my lupus is in remission so I feel fine. At my worst time, the lupus was attacking my heart and lungs. I want you to know that although these symptoms are normal, once your lupus stabilizes or goes into remission, you will be fine. Just keep a positive outlook on life, eat healthy, exericise, and taking calcium + D supplements. Good luck! I also have Lupus - SLE. It effects everyone differently. Keep in mind Lupus is more or less an umbrella term. Many things come along with it. It randomly chooses what it will attack. Be sure to have a doctor who is a good listener and not afraid to refer you to specialist as the need arises. Webmd has a great support group for those with Lupus - take a look. Good luck. yep... pretty normal(for lupus)... i have lupus too...what you're feeling is probably normal just be sure to keep checking with your doctor everytime you see a change in your condition... oh and a lil tip to start getting better is.... EAT HEALTHY. started doing that and it helped me out alot... so eat lots of fruits and veggies... and trust me... you'll start feeling better... so dont eat alot of fast food and junk food and try to get some exercise but dont over do yourself.... Please go to http://lupus.org and click on "about lupus" at the top left of the heading. It describes blood disorders associated with lupus such as anemia, clotting disorders, and others. Bone and joint disorders are common with lupus. The major cause is inflammation, which is controlled by the steroids. Pain, swelling, tenderness and fluid on and around the joints would not be unexpected. Muscle, tendon, and bursa sac inflammation can also occur, causing pain, weakness, stiffness, swelling, fluid retention, etc. Often lupus occurs with flares and remissions. During remission, you will feel much better. Lupus often runs hand-in-hand with fibromyalgia, causing fatigue, dizziness, general illness, etc. Sunlight is often a major trigger factor in those with lupus, triggering systemic illness, rashes, joint pain and fatigue, etc. Wear good sun block and reapply frequently. Avoid fluorescent light. Lupus can affect many organs and when you are symptomatic, you need to start treatment promptly. New drugs used for rheumatoid arthritis are proving promising in reducing damage caused by lupus and returning people to normal activity faster and for longer periods. Explore the net, get educated and be very proactive in controlling your disease. Consider antidepressants such as cymbalta which change the way your brain interprets pain and can help with the depression from a chronic disease. Consider yoga, massage, stress management education, etc. Get plenty of rest, lots of nutrition, follow up as scheduled, and keep your rheumatologist/immunologist informed of any changes in your condition. At this time there is no cure, but you can manage your disease and live better longer. I wish you the best. www.niams.nih.gov www.nil.nih.gov/medlineplus/lu... www.rheumatology.org/public/fa... www.mayoclinic.com/health/lupu... Yes i'm afraid so. Lupus affects everyone differently but all you describe are lupus symptoms. Do try the lupus uk site for more info (it's well worth joining this charity as a member) http://www.lupusuk.com/sitemap.asp... There is also good info on a site run by one of the local lupus uk groups http://www.uklupus.co.uk/ and I think this is a good site for "virtual chat" to others with lupus via the message boards etc - http://www.thelupussite.com/forum/... personal experience |
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