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| *Women health>>>Lupus |
Does anyone know someone with LUPUS ? |
And how does it affect them? Hi, I'm 16 and have recently been diagnosed with Lupus. It is an autoimmune disease that can affect your joints (usually knees, elbows, and ankles), kidneys, liver, lungs, and/or heart. It generally makes me feel very fatigued and I have horrible joint pain in my knees. I am currently on 100mg of Atabrine a day, and finally down to 9mg of Prednisone daily. There are a few different types of Lupus. There is discoid(skin involvement), systemic(organ involvement, in which I have), drug-induced, and neo-natal. Normally the immune system produces proteins called antibodies that protect the body from viruses and bacteria. In autoimmune diseases, the immune system instead produces antibodies directed against the healthy cells and tissues it is designed to protect. You may be more apt to infections, and usually cannot donate blood, for fear of affecting the disease holder. You have to get blood work done, usually every 3 months, although, since I'm so young, they do it about every 6 weeks. It usually affects women ages 15-45. Some symptoms are fatigue, joint pain, fever, skin rash, anemia, pleurisy, hair loss, sun sensitivity, seizures, and/or blood clotting problems. It can be fatal, but treatment greatly decreases chances of dying. Lupus is also known as the "Great Mimic", because it can mimic many other diseases. Some women find it hard to get pregnant. It is currently non-curable, but doctors are trying to fix that. Hope I helped! Both my mom and I have lupus and also my best friend. For all of us there is really just joint pain/swelling and sensitivity to the sunlight. My friend has more severe pain then my mom and I but she also has a connective tissue disease. When I have a flare up I end up on about 60 mg of Prednizone for a week or so. I am generally only off work for a day if I have a bad flare up, they tend to come on suddenly. YES It makes them feel very fatigued and they have to be careful about excessive exposure to sunlight and heat. I HAVE A FRIEND I'VE KNOWN FOR 20 YEARS NOW. SHE DISCOVERED HER LUPUS AFTER GOING TO A TANNING BED 9 YEARS AGO. KATHY IS HER NAME. SHE LIVES A FULL LIFE AS POSSIBLE. HER HEALTH IS NOT SO GOOD. SHE IS VERY SENSITIVE TO SUNLIGHT. SHE HAS NO CONTROL OF HER BAWL MOVEMENT, SHE WAS FORCED TO WEAR A CATHETER. HER KIDNEY'S ARE STARTING TO SHUT DOWN SOME DAYS ARE BETTER THAN OTHERS. SHE HAS STARTED A SUPPORT GROUP FOR LUPUS PATIENTS, AND IS A SPOKES PERSON FOR THE LUPUS FOUNDATION. SHE HAS DONE ALOT, WITH SO LITTLE ENERGY SHE HAS FROM DAY TO DAY.SHE HAS NEVER BEEN ONE TO COMPLAIN,SO NO ONE REALLY KNOW'S HOW MUCH PAIN SHE IS IN. MYSELF My wife has Lupus. She is the most beautiful person I have ever met and has been able to accomplish more than most people who don't have a disease. She has her good days and her bad ones. She has joint pain and will eventually need two knee replacement surgeries (her femer bones are necrotic or dead because of lack of bloodflow a common side affect of prolonged prednisone usage). She has kidney involvement so her creatine clearance levels are high, so eventually she'll need a kidney transplant. She isn't as sensitive to sunlight as others have mentiioned but she stays out of the sun as much as possible because sunburn can be very damaging to the Lupus patient. But rather than just go on and on about her symptoms I'd rather talk about what she has accomplished in her short life. She was diagnosed at 15 yrs old and is now 29. She completed dental school last year and is a practicing dentist. We have two beautiful children (adopted). She volunteers at a homeless shelter providing free dental care to the poor. Sometimes when I lie next to her in bed I feel guilty because she does so much good and has so many excuses as to why she shouldn't be able to get out of bed in the morning. Lupus has slowed her down sometimes but it will never beat her. |
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| Incontinence Infertility Irritable Bowel Syndrome Liposuction Lung Cancer Lupus Health Insurance Heart Disease Hepatitis High Blood Pressure |
| Related information |
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