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| *Women health>>>Lupus |
What kind of prognosis can one diagnosed with Lupus expect? I'm told it'll be OK, but I hear lots of stories. |
I have researched the usual sites online. And, I'm told it is usually manageable. But, verrrry often I have someone tell me of a loved one or friend they have had that has passed because of it. I guess, I'm trying to figure out what to expect. So far, I have had severe fatigue, skin rashes, and joints probs....both knees replaced. I am 40 years old. Should I prepare myself for a shorter life? I was diagnosed with Lupus in 1995. I'm 46 years old now. I have heard stories of people who have passed away from the illness too. It is terminal. As a matter of fact there was a neighbor of mine who had the disease and she died a few months later at age 36. She was a drinker and smoker. I don't drink, smoke, or use illegal drugs. I do have severe joint pain and I have lost all of my hair but it's trying to grow back. I get out and walk at least 4 times a week. I take supplements for circulation and heart health and drink plenty of bottled water for kidney function health. I was told that the kidneys will deterioate first and then the other organs will be effected. I have chest wall pain, fibromayalsia, rhuematoid arthritis, bursitis, thalasemia major, and advanced glaucoma. It's important to keep a positive attitude and look forward to life not anticipate death. If you haven't filed for social security disability yet you should. There are days that you will not be able to function and without a stable source of income you could have great financial difficulties. I have been hospitalized several times but because of changes that I have made I haven't been to the ER in a couple of years. I know people who are in their 60's and still kicking up their heels!! It's not a death sentence so don't act like it is. Find a local support group or go online for the 800 number and you can probably start one in your area. Remember, think of living not dying!!!! Enjoy yourself and keep active!!!! Easy fatiguability is a very nonspecific symptom. People with lupus can definitely have this symptom, but other conditions can present with the same symptom: any form of connective tissue diseases, systemic arthritic conditions (like Rheumatoid Arthritis), endocrine problems (hypothyroidism, adrenal insufficiency), heart diseases, renal diseases, neurologic problems and finally fibromyalgia, chronic fatigue syndrome and even depression. I wouldn't worry about how long your going to live. I know some young people 19 years old and up who have this. You will probably die from something else, not this. Lupus has nonspecific symptoms like fatigue, weakness, aches and pains, sometimes fever and more specific problems like certain classical rashes (butterfly rash, inter-articular rashes), oral/nasal ulcerations, arthritis, kidney disease, pleurisy/pericarditis (inflammation of the membranes around heart or lung), certain types of anemia, decrease in leukocyte/thrombocyte number, neurologic problems and finally the auto-antibodies when they present a high-titer. Antinuclear antibody is present but not diagnostic of lupus by itself. There are other auto antibodies which are more specific but not all lupus patients have them and not having them does not mean you can rule out lupus. The idea that lupus is generally a fatal disease is one of the gravest misconceptions about this illness. In fact, the prognosis of lupus is much better today than ever before. It is true that medical science has not yet developed a method for curing lupus and some people do die from the disease. However, people with non-organ threatening disease can look forward to a normal lifespan if they follow the instructions of their physician, take their medication(s) as prescribed, and know when to seek help for unexpected side effects of a medication or a new manifestation of their lupus. Although some people with lupus have severe recurrent attacks and are frequently hospitalized, most people with lupus rarely require hospitalization. There are many lupus patients who never have to be hospitalized, especially if they are careful and follow their physician's instructions. New research brings unexpected findings each year. The progress made in treatment and diagnosis during the last decade has been greater than that made over the past 100 years. It is therefore a sensible idea to maintain control of a disease that tomorrow may be curable. Hope this is informative Matador 89 |
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