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| *Women health>>>Lupus |
Will you tell your coworkers or friends you have SLE (Lupus)? Or just keep it as a secret? |
Hi, everyone, I am living in Taiwan. I am the gril with SLE(Lupus) which is an unfamiliar disease to the general public. Some of our group feel shamed for having it because the elder people told them that they have SLE due to having done something bad in previous life. So, I am just curious about that will you tell your friends or coworkers if you have SLE? Why yes, or no? Thanks. Hi Debby, first of all I am sorry that you have been diagnosed with this condition, and also that you feel unable to share this due to societal beliefs. I see no reason why you should not be able to conceal your illness. An ex colleague of mine had this condition and I worked with her for nearly two years before she revealed her condition. I was surprised that despite me having similar symptoms and also having trained as a nurse I had never suspected a thing. When I told her this she explained that when she had an off day she simply kept herself to herself and waited until she got home to flake out. On the days when she was really bad she had rang in sick, but as this was only ever for a couple of days, nobody had any reason to suspect she was chronically ill. However your ability to hide your condition also depends on the severity of your symptoms, and also the type of job you do. I suspect that if you were to have a longthy bout of severe pain or fatigue you would find it very difficult to carry on as normal, particularly if you have a physically demanding job. I say this because I have spent the past two years trying to conceal the fact that I have Fibromyalgia, as I didn't want to be seen as a hypochondriac, or as wanting special treatment. I was also worried about not being able to find a job, if my illness was seen as having had a significant impact on my ability to carry out my duties. However I now realise that I did not do myself any favours, because the stress of trying to carry on as normal has led to me now having to go on sick due to an exacerbation of my symptoms combined with a severe skin condition (more than likely stress related). I have also realised that I need my friends and colleagues to know as recieving support and knowing you are not alone is really important. I understand that you may feel ashamed of your illness but you have the opportunity to show people that the stigma associated with youir condition is inaccurate and unnecessary. In many developing countries TB is regarded as a shameful condition and people have avoided treatment as they are too afraid of the shame it would bring to the family. I appreciate that this is a different condition entirely and that your culture probably differs also. However what i am trying to say is stigmas are not helpful to anyone, and by raising awareness you have the opportunity to improve the life of yourself and others. Many countries with high rates of TB have now acknowledged this and developed educational programmes and support groups. As a result case detection and subsequent cure rates are slowly improving. I am not suggesting you go to these extremes but you could consider doing something similar. When my son was diagnosed with Autism we faced doubt from people who didn't believe in or understand his condition. We also feared that people would think it was due to bad parenting. As a result we decided to print off imformation leaflets and give them to friends and family. This was really helpful particularly as Autism is a difficult condition to describe. Doing this may help you, you may also be able to find support groups in your area, or online forums which may help you to become more aware of your condition and confident in talking about it and dispelling peoples misconceptions. I hope you find some of this useful, even if it may not seem entirely relevant. Good luck. I don't think it's something to be ashamed of but, then again I also don't believe in that reincarnation stuff. I'm not really sure why you would want to tell others though but, if you feel the need sure, go ahead. SSSSSHHHHH, OH GREAT Now the whole damn world knows!!! in your instance i would say keep it to yourself. In america, there is no connection of diseases to past lives in our beliefs, so since this would bring greif to you , just don't go there. of course it's nothing to be ashamed of n of course i'd tell them, so that if u were taken ill they'd know how to deal with it. it's just another disease after all. nothing to do with a previous life,thats superstition. I don't know how it'll affect other people. Lupus is pretty much self-centered disease. Like gonorrhea, keep it to yourself! Lupus is a culimination of diseases that attack the auto immune system. And has absolutley nothing to do with having done something wrong in a previous life. There is no cure for this afflication (well not at present) though a victim of this disease will be on medication. The way that I understand your situation is you are surrounded by supersition and fear of the unknown. And that it may well be best to keep it from your co-workers. As for your friends well you must decided whether they are real friends or not before you confide in them. Best wishes to you dear. |
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