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| *Women health>>>Lupus |
What is a good support group, disease knowledge page for systemic lupus? |
just recently diagnosed and want to learn more I have Lupus and APS (the sister clotting portion of this disease). Lupus is one of many disorders of the immune system known as autoimmune diseases. In autoimmune diseases, the immune system turns against parts of the body it is designed to protect. This leads to inflammation and damage to various body tissues. Lupus can affect many parts of the body, including the joints, skin, kidneys, heart, lungs, blood vessels, and brain. Although people with the disease may have many different symptoms, some of the most common ones include extreme fatigue, painful or swollen joints (arthritis), unexplained fever, skin rashes, and kidney problems. At present, there is no cure for lupus. However, lupus can be effectively treated with drugs, and most people with the disease can lead active, healthy lives. Lupus is characterized by periods of illness, called flares, and periods of wellness, or remission. Understanding how to prevent flares and how to treat them when they do occur helps people with lupus maintain better health. Intense research is underway, and scientists funded by the NIH are continuing to make great strides in understanding the disease, which may ultimately lead to a cure. Two of the major questions researchers are studying are who gets lupus and why. We know that many more women than men have lupus. Lupus is three times more common in African American women than in Caucasian women and is also more common in women of Hispanic, Asian, and Native American descent. In addition, lupus can run in families, but the risk that a child or a brother or sister of a patient will also have lupus is still quite low. It is difficult to estimate how many people in the United States have the disease because its symptoms vary widely and its onset is often hard to pinpoint. Lupus can be effectively treated with drugs, and most people with the disease can lead active, healthy lives. I have more information included some support groups for you listed below. It is important to take care of yourself, get your rest and take your medications. Keep a journal of you symptoms and take pictures of any strange rashes or discolorations you may get. Be an informed and educated patient! Good Luck! Source(s): http://www.apsfa.org/lupus.htm http://www.apsfa.org/links.htm#catid3269... http://www.apsfa.org/links3.htm#catid297... http://www.apsfa.org/meet.htm BBC - Health - Conditions - Systemic lupus erythematosus A guide 2 SLE, facts about the condition,& where 2 go 4 support. http://www.bbc.co.uk/health/conditions/s... Google search :0) Hope it helps! |
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I have Lupus and APS (the sister clotting portion of this disease). Lupus is one of many disorders of the immune system known as autoimmune diseases. In autoimmune diseases, the immune sy... My dad has leukemia and its just the same. If your white blood cell count is higher than the red blood cell count, its usually a type of leukemia. Ask your doctor to give you the results. ... I would go to get a second opinion if possible, as lupus does not have a clear positive or negative one test. But then, if this comes back positive start aggressive treatment early. In the 1... Yes--as they are both auto-immune diseases. Your immune system is out of whack and basically turns on you. Inflamation is one of the main pain sources for both conditions and steroids are... it depends on whether your lupus comes out of remission since its antibodies attacking your system it could take a while longer to heal but i'd say your knee surgery would effect your lu... Hi. I have systemic lupus and my pain sort of varies. Sometimes I feel really good. Sometimes I feel horrible. I have aching that is sometimes accompanied by a low fever. I take Ibuprofen an... I also have these. There is a great group you should join and you can ask these people about this and anything else. Its good that you want to be prepared. The group addy is: ... What is your question?... |
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