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| *Women health>>>Lupus |
Can someone with Lupus and Antiphospholipid syndrome whose kidneys start failing, go from 37% to49 w/o dialysi |
This is on my sister and she is always taking off work lately and finally told me about her kidneys failing, she said she was at 37%, then got it back up to 49%, I want to know if she is telling me the truth, she says the doctors say she is ok at 49%, I want to know if she is taking dyalysis and doesnt want me to know I know about a month ago she said she was going in for a hysterectomy, but did not want anyone from the family coming to the hospital, did she have a shunt put in for dyalisis. She has had Lupus for 23 years and always keeps a lot of secrets from me. I am a recovering Meth addict and I think she thinks if I find out she is dying that I will relapse, also she has SLE the worst kind of lupus you can have and over the years she has lost 5 babies, she has gottten rheumatoid arthritis,and she breaks out recently with some terrible rashes ! please help me undertand whats going on. My sister is only 47 years old ! Help Kidney failure is a tricky thing to intrepret... The percentages you are quoting sound like glomerular filtration rates (GFR), which are dependent on serum creatinine, age and sex. The serum creatinine is a tricky thing in itself in that it is very sensitive to many things - the most common being hydration status. That is because most blood tests are a fraction (e.g., what you are looking for/volume). If you are are dehydrated, it will make your creatinine rise and your GFR decrease. Kidneys are wonderful organs. One's GFR has to be between 10-15% before dialysis is usually considered. Unfortunatley SLE and Antiphospholipid are rough on the kidneys and usually progressive. However, most people die WITH kidney failure, not OF kidney failure Source(s): I'm a doctor Wow....you hardly ever hear of anyone having Antiphospholipid syndrome. My sister has it. She has trouble with her coumadin levels sometimes. But she does get kidney stones, too. Since she never had them before she got APS, they have to be caused by problems in the kidneys. She has never gone into failure. I don't know why your sister does want anyone to know what's going on with her. Ok, if she doesn't want anyone to come for the surgery, but at least she should tell you what's going on with her and I don't understand. I ask my sister whenever I talk to her how her coumadin levels are and she tells me. When I see her, I can tell when she may be taking too much because she bruises so easily. My sister is 60 and she's had this for 20 years. As one who has Antiphosholipid Syndrome( primary) and probable Lupus, I have to say that it is the APS that can cause this due to micro-clotting. Is your sister on anticoagulants? If she is her INR needs to be over 3.0 always. I just went through a kidney scare myself, but the damage was not permanent. I know others with this disease that have had kidney function return to a reasonable level. I only know of 2 personally who have had to undergo a kidney transplant.One is doing fine, the other is awaiting a second transplant. I kept my problems to my husband and did not chose to worry family members. Learning all I can and it's keeping me alive |
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