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| *Women health>>>Lupus |
Would Like To Meet Others With (SLE) Lupus....? |
I'm 19yrs old girl for the past year I have been sick with both pneumonia and food posiong , among this I'm still sick and feel bad finally I found out that I have (SLE) Systemic Lupus Erythematosus or Lupus for short ... I kno there is no cure but medication, but my main concern is that I want to know how my lifestyl will be from now on and how if possiable will I be able to live a normal life...So I'm asking any one with (SLE) around my age or older and I would really like to talk to some women who have had it for a long time as well to plz contact me , I just need to understand this disease more thank for your time... Feel Free To Add Me At: bluebabby91@yahoo.com thank you once again. Hi sweetie, well Im a bit, well old enough to be your mom older then you, however I own a lupus support group, and we have two teen girls whos mothers are in the group, one is 18, the other 15, both post occasionally, and I talk to them on the phone, and I belive they talk to each other and email each other. ok about your Lupus. I don't know how severe it is, but it can go from mild to very severe. Mine is moderate to severe. Id say usually moderate. Ive had it since my teens. Im now almost 40, have a 21 year old, and a 13 year old. right now Im coming out of what is called a flare, and going back to my normal activities. Since I dont have any major organ issues except for my liver, which I do have some control over, I can lead a pretty long normal life. I also do not know how you handle the sun, some can, some can't but if you can't, you really do need to avoid it, because if you can't it can bring on a flare. If you have a milder form, you can still go to college and work. I was able to do so until around 30. I may have had periods of being able to return to work, but Im married, and he makes decent money, so we saw no real reason for me to. Though most people find they have to modify their lives in some ways I know for a fact you can still have one. Its,all about learning about what your bodies limits are, knowing when it needs rest, when it needs activity, but when to stop, feeding it a decent diet, doing thing you like, going to scheduled dr's appoitments, taking perscribed medications, and knowing when your getting run down (low grade fevers, swollen glands, overly tired, he small stuff). I have been forunate I found a great rhuemotologist 10 years ago who I can call anytime, and she always calls me within 2 hours. She allows me to explain in full whats up, and allows feedback in what medication that may be most useful. honey, this is not the end of your life. The older teen I know, while being rather ill, still gets boys like crazy, goes out, etc, just finished HS. The younger one is looking foward to getting her drivers licence, so you can still have your dreams, and a love life. Life dosent end with this diagnosis, you just have to be clever enough to stay one step ahead of it, but you will be ok. good luck chris Source(s): http://health.groups.yahoo.com/group/lup... www.lupus.org lupus survivor i m really sry for u You may actually have Celiac disease, which is commonly misdiagnosed as lupus, especially in the states. It can cause the symptoms you describe and lead to lupus if untreated. This was the case with my mother. The best test for celiac disease (without spending a fortune) is a stool test, costs about $100. http://digestive.niddk.nih.gov/ddiseases... http://www.ncbi.nlm.nih.gov/sites/entrez... I have celiac disease. My mother had celiac disease and was misdiagnosed with lupus. I am living with lupus and with lupus kidney disease and actually living a very good life. You might go to www.lupus.org and see if there is a support group in your area. Not all support groups are great, but you could still visit once or twice. You will make friends with lupus there. Outside of that, feel free to email me. The life style changes are pretty good for the most part. Reduce and learn to handle stress. Eat a healthy diet. Avoid the sun. Get moderate exercise. Rest before you get exhausted. Follow your treatment regimen. See your rheumatologist often. Don't let symptoms get out of hand before calling the doc. |
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