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Do you have Lupus? What kind? What medications do you take and are they working for you?



Just curious to see who has Lupus and what meds they are taking. My doc gave me Naprosyn (it works for inflammation), Phenergren (for nausea and sleep, it works), Tramdol/Ultram for pain (it sucks) and Percocet for pain (starting to lose it's touch). Also, my hands, fingers, legs and shoulders ache. Is it possible I might have Rheumatoid Arthritis? I am so tired and my body hurts. Some days good, others bad. If you have Lupus or RA, what treatments seem to work for you??? Any suggestions???

Hi, Im Chris, I have Lupus, and a few other autoimmune diseases. When it comes to medications for Lupus, Its very hard to say what will work for one individual or another. i do know this. When it comes to narcartics, you can take one for only so long before it starts to loose its potency, soon the body becomes resistant to its ability to aid in pain managment. I have been on them all. From Vicoden to oxycontin and morphine. Right now, even with pain, I am on Vicoden. I keep it to 2 a day so I do not oversaturate my body, and build a resistance. It seems to be working. Naprosyn taken over long periods, can eat away at your stomache having long term affects, I dont take it or anything for joint pain speciffically. I have had Lupus diagnosed for over 12 yrs, undiagnosed since my teens. When it comes to your hands, fingers, legs and shoulders, it may be possible you are experiencing Fibrthe brain, giving fibromyalgia on top of it, and would need a different class of medication entirely.

In my case I am on Plaquinil, Ive benn off/on Cellcept (I have somthing called cebritis which affects my brain, causing migranes and seizures) and it can make them worse, while making other symptoms better. I was on IV Cytoxin for it a Chemotherapy/immunosuppresent last year. But over the years, I have been on prednison, Methotrexate, Imuran, As well as amptrityline, and other antideppresent. which were not perscribed for the depression, but for muscle pain. If you have nerve pain, they perscribe things like nuerotin and other medications that work on your nervous system.

Lupus, changes it face all the time and is called the great pretender, and medications usually have to be changed often, or altered. You really need to go back to your rhemotologist, have a good talk with him/her, and be reevaluated. It seems your symptoms are changing, and that it may be time that new medications may be needed. I do not think you have RA, but they can test your blood to be sure, it sounds more like you may have fibromyalgia. which I will give you some links for, and require very different meds than what your on now.

I do co-own a Lupus/autoimmune support group, we address these issues, as well as general life issues. you are welcome there, to make friends, chat, and gain access to the files and links. But you need to get to a Dr. and get re evaluated. I will provide some Fibromyalgia links, RA links, Lupus links as well. Good Luck,
Chris Source(s): http://www.mayoclinic.com/health/fibromy...
http://www.fmaware.org/site/pageserver...

http://www.lupus.org/newsite/index.html...
http://www.nlm.nih.gov/medlineplus/lupus...

http://www.nlm.nih.gov/medlineplus/rheum...

http://health.groups.yahoo.com/group/lup... (yahoo support group)
Hot baths and showers

Regular exercise even when you don't feel like it

Stress management techniques-find what works for you

Avoid sun

Rest before you get tired

I chose to be mostly vegetarian with a little meat once a month. It makes a difference for me.

Lots of fruits and veggies.

No processed food.

Ibuprofen when I hurt

Plaquenil and Cellcept daily and will continue for life.
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Incontinence Infertility Irritable Bowel Syndrome Liposuction Lung Cancer Lupus Health Insurance Heart Disease Hepatitis High Blood Pressure
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