Women health
*Women health>>>Lupus

Plaquenil for LUPUS, Do I have to take it?



Hello,,, I was diagnosed with lupus about 3 weeks ago. I had rashes all over my body about 3 months ago with pain my joints, took 60mg of with gradually going down on predisone and all my rashes gone!,,, now I'm at 10mg of predisone! with now pains and no rashes. I've taking predisone with with OMEGA 3, ISOTONIX OPC 3, 400mg of vitamin E, 1000mg of vitamin C, 1000mg of calcium, because at the same time I was taking NSAID pills like iboproofen and now I take none!

But my doctor recently told me that I should stop taking predisone and take Plaquenil... I really dont want to cause I heard of its side effects like for example losing vision!,, I would totaly freakout if that ever happens to me,,,, you think it's a must to take this medicine,?? I mean I'm taking all of these supplements which I'm more then sure that they are really working,,, with Omega 3 I dont have to take more NSAID pills, with Isotonix OPC-3 I'm getting a whole bunch of antioxidants,, what do you guy recomend me to do

Yes, most lupus patients take plaquenil for life. Have regular thorough eye exams. If anything is happening you stop the plaquenil and it stops the damage. The vast majority of people have no visual problems from plaquenil.

I would worry a lot more about prednisone. 10 mg a day for 3 months and you begin to have bone loss. Additionally, prednisone causes weight gain, mood swings, cataracts, high blood pressure and diabetes.

Plaquenil changes the ph on the surface of the immune cells so they cannot get "turned on" and go around destroying your own organs.

It takes time for plaquenil to work well. It's not like ibuprofen that you take for pain or inflammation and the problem goes away. You stay on plaquenil. Source(s): Systemic Lupus Erythematosus by Dubois (medical textbook)
www.lupus.org
It takes about 6 months to a year for those nutrients to improve the immune system fully. The antioxidants are great and will help but Lupus is a very serious condition.

You say you are still taking prednizone so honestly you don't know how active the disease is without the prednizone.

If you are afraid of the side effects of Plaquenil then you should also be very afraid of the side effects of prednizone.

Personally, I have Rheumatoid Arthritis and I chose the healthy method over the medications but that was a personal choice based on my experience with medications not working on me. (I was totally allergic to plaquenil, and trust me the other meds have far worse side effects)

Along with the vitamins/minerals and oils, diet is very important and you might consider elliminating a list of obvious foods that inhibit proper digestion, weakening the immune system.

I would make a suggestion for something you might add to all that you are doing........I won't tell you about it here, but instead send you to a webpage on this treatment. (I don't sell anything through this treatment, just believe in it's benefits) It's very inexpensive to do, just takes a bit of time, but might be something that would increase your chances of fighting Lupus, but you would have to be the judge of that.

Good luck in your choices.......I remember when I was first diagnosed with RA I had been given a cortizone shot and thought it cured me since I felt no pain so I didn't take the Plaquenil until 3 weeks later when I realized that the effects of the cortizone would wear off.......What a mistake, at that time because most disease modifying meds take a period of time to start working in regards to both Lupus and RA.

Oh, and don't expect your doctor to support you living without meds, took years for me to prove to my doctor that it was possible.
http://www.livingwithrheumatoidarthritis...
Hi,
I have lupus. I take Plaquenil. It has kept my lupus at bay for three years now. The prednisone suppresses your immune system and causes havoc to your body, so you don't want to take it forever. My friend was on long-term prednisone after an organ transplant (not-lupus related) and she was blown-up and swollen like a balloon.

It scared me at first to think of vision problems with Plaquenil, but I found a good eye doctor who checks my eyes every 6 months and tells me what to watch out for. I take my plaquenil (or Hydrocloroquine - generic) at night because it gives me diarrhea.

I take Advil once a day. I also take Wob-enzyme and that helps me.

Good luck!
I had the same issues before I started Plaquenil. You'll be happy to note that the loss of vision is SO RARE on the maintenance doses that you're more likely to go blind from Irits (another Lupus symptom).

Longterm use of Prednisone is much more dangerous (heart problems, weight problems, etc).

Make sure you take a good multivitamin. Get lots of rest. Read about LUPUS and join a support group.

There is an online support group (see below).
http://www.butyoudontlooksick.com...
Tags
Incontinence Infertility Irritable Bowel Syndrome Liposuction Lung Cancer Lupus Health Insurance Heart Disease Hepatitis High Blood Pressure
Related information
  • Plaquenil for LUPUS, Do I have to take it?
    Yes, most lupus patients take plaquenil for life. Have regular thorough eye exams. If anything is happening you stop the plaquenil and it stops the damage. The vast majority of people have n...
  • Discoid Lupus..Any cream that will help clear rash..only got DiproBase Emollient?
    Discoid lupus erythematosus What are the aims of this leaflet? This leaflet has been written to help you understand more about discoid lupus erythematosus. It tells you what it is,...
  • Can Lupus get up and leave your body--------permanately?
    You still have the symptoms that can go along with lupus EXCEPT the blood from the anus. Get medical attention for that NOW! The same patient with the same symptoms may present themselve...
  • Does Lupus cause Jaw joint pain.?
    TMJ is a possibiliy. We don't realize we're gritting our teeth at night. The dentist gave me Flexerel for a month to stop the inflamation....
  • Has lupus caused false drug screens on anyone please answer?
    Lupus can cause a false positive for syphllis, not for those illegal drugs. Try again....
  • Can Lupus Anticoagulant be detected before a miscarriage occurs?
    Some lupus patients have clotting disorders. They can be detected by a blood test. Unless a doctor knows the patient has lupus and suspects a clotting disorder, they will not test for it. Th...
  • SLE Lupus since 2001 16 now, 5'3 prednisone, plaquanil, cellcept is my growth stunted for good?
    Prednisone and plaquenil can affect your bones, but I honestly don't know if they stunt your growth. That would be a question to ask your rheumatologist. At 16, especially if you are a g...
  • My mother has lupus my aunt died of it at age 45 my mother is turning 39 i know what it is but i need to know?
    Hi, Im Chris. I dont know what year it was when your aunt died, or if your moms tumor is benign or malignant, or if she will need chemo. I do know that In just the last 10 years life expecta...
  •    

    Health Categories--Copyright/IP Policy--Contact Webmaster
    The information on whfhhc.com is provided for educational and informational purposes only and is not a substitute for medical advice or treatment for any medical conditions.