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What helps your multiple sclerosis? Any helpful info?

I am 38 and was diagnosed nearly 5 years ago. Looking back, I should have been diagnosed in my early twenties. Anyway, took Avonex for 2 years, Rebif for 2 and have NOT been on any meds since Dec. 08. I'm going back on Rebif next month. Every MS victim has different symptoms, but I'm just looking for anything that may help my fatigue, numbness and pain. Thanks!

Hi Tammy, I had the same problem and I was thoroughly disgusted until I started taking LDN. Wow, did that ever get me feeling good again. LDN stands for low dose naltrexone. You can research it at LDN..ORG or just type low dose Naltrexone into your web browser. Have you asked your neurologist for some suggestions for a pain med and something to fight the fatigue? I am sure he/she will have some suggestions as well. The best of luck to you! I hope you are feeling better soon.

well i was diagnosed with ms over the summer...ugh...and i was 14....and i still havent found away to get away from all this... just sleep but sometimes for me eating all natural food shrugs off some of the fatigue....if you wanna talk...xmcrguyx@yahoo.com ....even tho you probably dont want to talk to a 15y/o...

I sleep more, eat healthier...stay away from heat i.e. hot showers...

And overall try to be more positive.

The best advice I have is to have great communication with the neurologist!

Drug-wise:
I'm a nurse with MS. I spent a great deal of time talking with my doctor and reviewing the literature to decide which drug was best. Because I have two very active children (3 & 4...they were 1 & 2 when I was diagnosed), along with still working part-time, I chose Copaxone so as not to have flu-symptoms.

Non-drug:
I tracked my flair ups against my monthly cycle for 10 mo. Many women notice they have more symptoms mid-cycle or right before they begin their period. Don't you love hormones? I had a hysterectomy 5 mo. ago and have not had a flair since <knock wood>

Mentally:
Having a positive outlook cannot cure MS, but it can reduce your stress and help you feel better. I do not see myself as an MS victim, I just happen to have it. Like I happen to have a spouse, 2 rambunctious kids, a demanding job and professional leadership roles, and 2 dogs. It's a lot to manage but doable.

Exercise and/or PT: Maintaining a healthy weight will help with mobility problems. Also, they can help with spasticity and muscle weakness.
Exercises, such as tai chi and yoga can lower your stress, help you to be more relaxed, and increase your energy, balance, and flexibility. As with any exercise program, check with your doctor before getting started.

Going along with exercise...
Fatigue: While staying active, be sure to get plenty of rest too
Don't get overheated: Whether you are exercising or doing work, try not to get overheated so you won't have a pseudoflair and get fatigued. (Personally, hot showers and work/exercise don鈥檛 bother me but any little bit of fever wipes me out.)

Books:
I also like the 鈥淢S for Dummies鈥?book. For me MS was the devil I knew since my mom and aunt have it. But the book was a good reference. Plus there were tips I hadn鈥檛 heard of or thought about.

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Medication Safety Menopause Menstrual Disorders Metabolic Syndrome Migraine Multiple Sclerosis Naturopathy Nutrition Incontinence Infertility
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